tag:blogger.com,1999:blog-2872918251244874644.post5422400143007811234..comments2024-03-28T03:40:29.423-04:00Comments on Passage des Perles: When dreams derailDuchessehttp://www.blogger.com/profile/09986153653120526776noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-2872918251244874644.post-42615063962228079062011-09-27T20:12:01.153-04:002011-09-27T20:12:01.153-04:00chicatanyage: Yes, he says he feels "10 1/2 t...chicatanyage: Yes, he says he feels "10 1/2 times better" this week than last. I too have told him how inspired I am by his determination.Duchessehttps://www.blogger.com/profile/09986153653120526776noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-52492405574565525982011-09-26T04:19:15.902-04:002011-09-26T04:19:15.902-04:00Our children are so precious to us it is aways dee...Our children are so precious to us it is aways deeply moving to discover that things are not as we might have wished. However I am always amazed at how resilient young people can be certainly mine have been under challenging circumstances and I learn more from their example than anything else.Anonymoushttps://www.blogger.com/profile/08902418849121978821noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-37536146771724350452011-09-23T08:55:11.479-04:002011-09-23T08:55:11.479-04:00Oh no! At least it was discovered! Prayers to all ...Oh no! At least it was discovered! Prayers to all of you!<br />-linda,nylindahttps://www.blogger.com/profile/05058867044295058233noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-16012452949359243622011-09-20T23:31:24.908-04:002011-09-20T23:31:24.908-04:00Dear Duchesse,
A warm hug to you and Jules. My hea...Dear Duchesse,<br />A warm hug to you and Jules. My heart breaks for Jules and your family. The resilience and sense of hope and love that you share with Jules is heart warming.<br />Your motherly love and belief in your son shines through.<br />All my love<br />Mary-EllenMary Ellenhttps://www.blogger.com/profile/16867254447688908445noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-61310813046992000172011-09-20T23:29:20.771-04:002011-09-20T23:29:20.771-04:00Dear Duchesse,
A big warm hug to you and to Jules....Dear Duchesse,<br />A big warm hug to you and to Jules. I'm heart broken for all of you. But you've warmed my heart with the resilience and determination you share with Jules. And your motherly support and love shines through.<br />With love and affection,<br />Mary-EllenMary Ellenhttps://www.blogger.com/profile/16867254447688908445noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-90180731998830023952011-09-20T21:27:41.830-04:002011-09-20T21:27:41.830-04:00Oh, Duchesse, I'm so sorry,
Good thoughts to...Oh, Duchesse, I'm so sorry, <br /><br />Good thoughts to all of you, <br /><br />Franciewilliamhttps://www.blogger.com/profile/04025284630732323591noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-80067548839591222192011-09-20T19:51:06.496-04:002011-09-20T19:51:06.496-04:00Not only should family members be tested for this ...Not only should family members be tested for this condition, but also for celiac. This paper outlines the non-causative link between gluten and 2 types of cardiomyopathy.<br /><br />http://eurheartj.oxfordjournals.org/content/24/15/1455.full<br /><br />Best wishes to you allAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-66570578032228964252011-09-20T18:40:35.034-04:002011-09-20T18:40:35.034-04:00Thank goodness it was picked up before he went on ...Thank goodness it was picked up before he went on basic training. What a shock - but your resilience is incredibly admirable. I am sure that Jules will find a Plan B that is fulfilling and wonderful.Tiffanyhttps://www.blogger.com/profile/11536212906241844509noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-52959480185846044432011-09-20T17:58:19.237-04:002011-09-20T17:58:19.237-04:00It is difficult to have news like this -- I'm ...It is difficult to have news like this -- I'm sending you all my love and good wishes.Rubihttps://www.blogger.com/profile/00905190883295023521noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-87767447270525441122011-09-20T17:05:47.901-04:002011-09-20T17:05:47.901-04:00I'm sorry to hear this, but what a relief to f...I'm sorry to hear this, but what a relief to find out this way! <br /><br />Hope he has some other career plan to fall back on, and that he will get wise advice on how to keep fit (and have fun) despite this rare condition. <br /><br />Materfamilias and anonymous, I'm very sorry.lagatta à montréalhttp://montréalcyclechic.comnoreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-45478248082074475702011-09-20T15:12:49.786-04:002011-09-20T15:12:49.786-04:00All: We are touched and deeply appreciate everyone...All: We are touched and deeply appreciate everyone's comments; I have received strength from them.<br /><br />materfamilias: I am so sorry for your loss which of course is timeless. Your story may encourage others to be open about any health problem, if they can. <br /><br />C.: This is so sad. Yes, he may have a defib installed. J. has a moderate case but we learned today, no clots, so that's good news.Duchessehttps://www.blogger.com/profile/09986153653120526776noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-37124554911564275862011-09-20T14:49:14.365-04:002011-09-20T14:49:14.365-04:00Oh Duchesse, this touches a very tender spot for m...Oh Duchesse, this touches a very tender spot for me. We lost my 15 year-old nephew to the same malady several years ago. After his death, his brother and father were tested, and both were found to have less severe versions of the condition. Since then, they have had defibrillators implanted, and my sister can sleep a little better. It is SO fortunate that Jules was thoroughly examined. Although it can be very difficult for an intrepid young man to feel that his strong body is not perfectly dependable, I have no doubt that your son will develop a glorious Plan B; I wish you all a healthy, happy future.<br /><br />C.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-9071322084724421402011-09-20T14:47:36.058-04:002011-09-20T14:47:36.058-04:00Duchesse: My best friend also married a guy who t...Duchesse: My best friend also married a guy who turned out to be gay - she found him in bed with their lawyer - you couldn't make it up.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-36443895794020222552011-09-20T14:31:51.971-04:002011-09-20T14:31:51.971-04:00I am awfully sorry your son is facing this health ...I am awfully sorry your son is facing this health reality and huge disappointment all at once. I am glad you will be with him soon as I imagine he'll be needing lots of hugs and someone close to talk about Plan B ideas. You'll be in my thoughts.Susan Tinerhttps://www.blogger.com/profile/11900811284963063686noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-71792366408374220132011-09-20T13:50:34.933-04:002011-09-20T13:50:34.933-04:00truly stunning news! I agree with coffeeaddict--in...truly stunning news! I agree with coffeeaddict--inhale, exhale.<br /><br />Best to you and your family.Jean Snoreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-46005533431837704072011-09-20T13:47:17.687-04:002011-09-20T13:47:17.687-04:00I applaud him, and I applaud you. You have writte...I applaud him, and I applaud you. You have written beautifully and movingly and encouragingly.Marshahttps://www.blogger.com/profile/14035642478179187618noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-9871497685763889402011-09-20T12:23:26.231-04:002011-09-20T12:23:26.231-04:00My goodness. What a wonderful person your son is ...My goodness. What a wonderful person your son is that he can already contemplate "Plan B". And clearly you did a good job, mama, because he's coping. Being a mother is terrifying no matter the age it seems... my twins are 5, and we're just dealing with swimming and putting one's face in the water. Love and hugs.spacegeek33https://www.blogger.com/profile/01765730326502142549noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-77523668557145087642011-09-20T12:10:25.894-04:002011-09-20T12:10:25.894-04:00Duchesse; my heart goes out to you and your family...Duchesse; my heart goes out to you and your family. I too have had to learn to live with the deep uncertainty of life; not just theoretically. And when the lesson comes in the form of our children...Ok enough. I'll be thinking about you. Please keep us all posted.laurieannnoreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-59385402766407315472011-09-20T12:03:05.479-04:002011-09-20T12:03:05.479-04:00I am so sorry that Jules can't pursue his plan...I am so sorry that Jules can't pursue his plans. I am sure it will take a while to regroup, and focus on another path, but I am sure he will find something and probably look back eventually saying it was the best thing that could have happened. But I am so glad they found this! What a gift his plans and the accompanying physical gave you!<br /><br />Still, finding out anything of concern about our kids is so hard, and I hope you are OK.LPChttps://www.blogger.com/profile/18209861350905135093noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-87545508116806652582011-09-20T11:28:19.207-04:002011-09-20T11:28:19.207-04:00My thoughts are with you and Jules. Hang in there....My thoughts are with you and Jules. Hang in there.La Locahttps://www.blogger.com/profile/11787872640044660485noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-83818436399905303442011-09-20T10:34:39.685-04:002011-09-20T10:34:39.685-04:00How fortunate that it was found early. As ye mour...How fortunate that it was found early. As ye mourns the loss of his dream and that youthful innocent faith in immortality, he will hopefully find his equanimity soon with his family and friends to support him. <br /><br />May you rejoice in having your son close to hung, potential tragedy averted, and may he learn to live and work with his condition, a part of who he is but not defining him.Mardelhttps://www.blogger.com/profile/04850551308931710502noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-147999808760670872011-09-20T10:32:20.828-04:002011-09-20T10:32:20.828-04:00Yes, terrified and relieved, beautiful post. Somet...Yes, terrified and relieved, beautiful post. Sometimes it's also terrifying being a mother. I'm sure he cannot wait to come home for you to hold him and support him in whatever new life may be before him.Tish Jetthttps://www.blogger.com/profile/08865177127050648489noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-88011153350445781352011-09-20T10:23:16.949-04:002011-09-20T10:23:16.949-04:00I am very sorry to hear this - your poise and refl...I am very sorry to hear this - your poise and reflection is completely inspiring. We should all have such grace. Wishing the best of health and "normalcy" to Jules.HBnoreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-30812955042675155862011-09-20T10:09:36.328-04:002011-09-20T10:09:36.328-04:00You never know what is around the next corner...
...You never know what is around the next corner...<br /><br />at least your son has knowledge of his condition and can take appropriate steps to keep healthy.<br />He will likely need some hugs and support as his dream career has been sidetracked. You must feel good that you will get to see him soon.hostess of the humble bungalowhttps://www.blogger.com/profile/06453827257671312902noreply@blogger.comtag:blogger.com,1999:blog-2872918251244874644.post-23683406508447220382011-09-20T10:01:15.823-04:002011-09-20T10:01:15.823-04:00A blow such as this, touching our children, is alw...A blow such as this, touching our children, is always hard. It sounds as though you have all responded with grace and equanimity. The other commenters are right - this blessing of discovery gives you knowledge and time. Best wishes to your family as you sort through this.ilonahttps://www.blogger.com/profile/09549380953245364444noreply@blogger.com